Pages tagged "Sadie"

Meet Sadie: 2017 Speak Now for Kids Family Advocacy Day Hero

Sadie is a brave and big-hearted 10-year-old from New Hampshire. Born at only 32 weeks, Sadie was immediately taken by med-flight to Dartmouth-Hitchcock Hospital in New Hampshire. There, she was diagnosed with chylothorax — a lymphatic "leak" causing fluid accumulation in the lungs and skin — and spent six weeks in the neonatal intensive care unit (NICU).

When Sadie was about 6 months old, her pediatrician began to have concerns about her gross motor delays and referred her parents to a pediatric neurologist. After a year of MRIs, spinal taps and various other tests, she was diagnosed with Spastic Diplegic Cerebral Palsy (CP) — a brain-based movement disorder that affects her muscle tone, coordination and balance.