Meet Roshanae: 2019 Family Advocacy Day Child Champion

Roshanae is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Roshanae will share information about her health journey and the importance of children’s health care with members of Congress. Below is her story.

Roshanae is a policy wonk who loves to watch CSPAN—she even watches during her stays in the hospital!

Roshanae has been receiving treatment for sickle cell disease at UCSF Benioff Children's Hospital Oakland since she was diagnosed at age 4. Sickle cell disease gets worse with age, so Roshanae has had to endure more hospital visits as her condition progresses. Now 20, she continues to travel hundreds of miles from her college in Riverside to receive the care she needs in Oakland.

“It's hard because no one understands how difficult it is to be in constant pain every day,” she shares.

Roshanae is a foster youth who, despite her illness, wants to pursue a career in health policy once she graduates. She’s excited to come to Washington to tell lawmakers about the importance of Medicaid and why funding research on sickle cell is crucial to patients like her.

Join us to welcome Roshanae to 2019 Family Advocacy Day!

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