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Meet Jordyn: 2019 Family Advocacy Day Child Champion

Jordyn is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Jordyn will share information about her health journey and the importance of children’s health care with members of Congress. Below is her story.

Meet Jordyn! Jordyn is a very bubbly, energetic 8-year-old, who never stops moving. Jordyn is always looking out for other people—even when she is in the hospital, she tries to find ways to help the other children. When she’s not doing cartwheels or cheerleading, she’s trying to figure out ways to make other people happy.

Born four weeks premature, Jordyn spent her first few months of life in the Neonatal Intensive Care Unit at the Children's Hospital of San Antonio. She was diagnosed with hydrocephalus, annular pancreas, malrotation of the intestines, and an atrial septal defect. In addition, Jordyn was born with only one kidney, missing and fused ribs, scoliosis, and a tethered spinal cord.

Altogether, Jordyn has endured 12 surgeries, beginning when she was just four days old and continuing through last fall. If you had to use a single word to describe Jordyn it would be “resilient”. She has come out of every one of these surgeries a fighter, ready to take on whatever is next.

When she grows up, Jordyn wants to go into the medical field. She wants to be a hero for other children, like the team at Children’s Hospital of San Antonio have been for her!

Join us in welcoming Jordyn to Family Advocacy Day 2019.


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commented 2019-06-23 12:58:31 -0400 · Flag
Ms Jordyn you are such a blessing for all who know you. We love Little one!! You are a beautiful soul ❤️