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Meet Jonathan: 2019 Family Advocacy Day Child Champion

Jonathan is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Jonathan will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

Jonathan is an adorable curly-haired 5-year-old. Though he doesn’t talk, he still manages to capture the hearts of everyone he meets. He’s resilient and always has a smile on his face!

Jonathan has faced many hurdles since birth, including coronary heart disease, seizure disorder, reactive airway disease and failure to thrive. Luckily, the team at Children’s Hospital at Montefiore has been there for him and his family every step of the way—they’re incredibly grateful for the exceptional care they’ve received there.

Despite his great care team and supportive family, Jonathan’s condition is lifelong. He is stable enough to live outside the hospital in a medical home, but he depends on technology to survive—he will never be “better.” Still, his spirit can brighten the day of anyone he meets.

Jonathan loves to read picture books and watch Daniel Tiger’s Neighborhood. And he wants you to know that he cannot wait for his trip to Disney World!  

Join us in welcoming Jonathan to 2019 Family Advocacy Day!


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