The Start of Medicaid Matters for Kids Mondays
Starting February 1, and continuing every Monday for the rest of the year, Speak Now for Kids will share facts and personal stories about Medicaid and how this program impacts children’s health.
Throughout 2016, you will learn about new kids and get an update on some former Speak Now for Kids Family Advocacy Day participants.
One story that made a big impact on us was New Jersey’s Lily Putney. When Lily was born in Yokosuka, Japan, she was happy, healthy, and developmentally normal until about 15 months of age. An ear infection failed to respond to a week of standard antibiotics and her condition spiraled out of control.
Lily was hospitalized for a series of seizures, which continued during her four-day stay in a hospital in Japan. She then was flown to a hospital in Hawaii and eventually to a series of military and children’s hospitals stateside. Lily was diagnosed with “presumed viral encephalitis,” an inflammation of the brain, seizure disorder, developmental delay and cerebral palsy.
After a series of relocations during Lily’s lifetime, her parents settled back in their hometown of Egg Harbor Township, NJ, in 2010, where Lily has enjoyed the therapeutic services of providers in the local Children’s Specialized Hospital satellite office.
While the family is covered under TRICARE Standard, Lily’s care is supplemented by Medicaid which covers the TRICARE deductible, copays for Lily’s care, diapers, and other medical treatment and supplies that may not be covered by TRICARE.
Lily continues to have private duty nursing at home and at school, which her family believes greatly improves her quality of life and ensures her overall safety and well-being.
Learn more about Lily’s personal story here: