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Medicaid Matters for Kids Mondays - Noah

Speak Now for Kids is celebrating Medicaid Matters for Kids Mondays with posts highlighting the importance of Medicaid in children’s access to health care. This week, we spoke to Noah’s mom, Kristina. Noah is a Speak Now for Kids Family Advocacy Day alum and current patient at Boston Children’s Hospital.

My son, Noah, was born with a rare heart defect called hypoplastic left heart syndrome (HLHS). Noah is essentially missing the left side of his heart, so the right side of his heart pumps blood to both his lungs and body. Since there is no cure for congenital heart defects, treatment for children with HLHS is considered palliative and not curative. Noah had his first open-heart surgery when he was just 3 days old at Boston Children’s Hospital. Noah needed another heart surgery when he was 4 months old, and he will require a third surgery next summer.

Aside from cardiology, Noah sees multiple other specialists to not only keep him alive, but also to help him thrive. Medicaid plays an important role in ensuring that children with complex medical needs — even those also covered under private insurance — receive the health care they need. My son has Medicaid in addition to private insurance to help cover the costs of copays for his medications, feeding tube supplies, weekly physicals, occupational and speech therapy appointments, and monthly specialist visits.

Noah also has a nurse to help take care of him. This nursing coverage is only possible with Medicaid, as his private insurance does not cover nursing care. Without Medicaid, our family would be faced with hundreds or even thousands of dollars a month in medical expenses. Medicaid means that our family can focus more on helping Noah thrive, instead of worrying about how we can afford the specialists and therapists he needs. 


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