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Lucas's Story

Our son, Lucas, was born with a complex congenital heart defect called hypoplastic left heart syndrome (HLHS) in 2007. At that time my husband and I were both employed full-time and both had full medical coverage, but we were faced with the challenge that one of us would have to be his full-time caregiver at home due to his complex medical condition.

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We quickly realized that this would totally change our lives and our current situation, both emotionally and financially. We had just relocated to Central Florida due to an amazing job opportunity that was presented to me. We were financially stable but we never imagined the challenges and difficulties being a full-time care taker and losing one income would bring us.

We are forever grateful that Medicaid was an option for health care in our state. Our son was fully covered for the duration that we needed the assistance. Without Medicaid, our son would not be here today.

Medicaid covered his three lifesaving surgeries to repair his complex heart defect, the procedures he needed in between, his countless doctors’ visits, his therapies, his medication and the medical care of his siblings during this time as well.

I look back at that particular time in our lives and I honestly don’t know how we made it but we did. Even though we no longer need the services of Medicaid we realize that the sacrifices that we made, the hard times, the days we were not sure how to explain things to the kids, and the countless times that we faced fear of what the next day would bring; we would not have it any other way.

We are forever grateful that we had the opportunity to have benefited from the Medicaid program during that time in our lives. 

About the author

Jennifer Iguina is a mother of three children. Her youngest, Lucas, has a congenital heart defect (CHD). Her husband and family reside in Central Florida. Together they are dedicated to giving back to the CHD community.

Advocacy is Jennifer's passion, and her family shares that with her. She volunteers for the Pediatric Congenital Heart Association, Children's Miracle Network and her local hospitals.


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