Family Advocacy Day Hero -- Meet Zoey K.

ZoeyK.jpgZoey Nidhi K., Age 2
Hometown: Houston, TX
Hospital: Texas Children’s Hospital, Houston, TX

Less than a year ago, Zoey, who hails from Mumbai, India, was brought home to the United States. At 2 years old, she was just 25” tall, weighed 16 pounds and was below the 3rd percentile of height and weight for girls with achondroplasia, a form of dwarfism. After getting through some of her initial exams, Zoey has been able to avoid the need for any surgery to correct hearing loss or apnea, two common side-effects of achondroplasia. While her skeletal system seems to be intact currently, she is expected to require some level of orthopedic care in the future.

To get the specialized care she needs, Zoey has to travel across half the country to meet with specialists at Alfred I. duPont Hospital for Children in Delaware as well as experts at the local Texas Children’s Hospital in Houston. Under the supervision of this team of experts, she will be afforded care that would’ve never been available to her in India. When her parents met her, she was an “inmate” at a state run orphanage that was previously a correctional facility. Now, she is progressing at an astronomical rate and will be attending preschool in the fall. Her parents, Bill Klein and Jennifer Arnold, are excited and nervous to see their precious daughter start school in a few years.

Showing 1 reaction

followed this page 2018-08-25 22:31:32 -0400