Family Advocacy Day Hero -- Meet Tony C.
Tony C., Age 14
Hometown: Sarasota, FL
Hospital: All Children’s Hospital Johns Hopkins Medicine, St. Petersburg, FL
A charismatic teen who lives life to the fullest, Tony’s 2011 diagnosis of clear cell sarcoma of the kidney was the beginning of a close relationship with All Children’s Hospital Johns Hopkins Medicine. Clear cell sarcoma is a childhood cancer that is so rare that treatment is often given in conjunction with a clinical trial. Tony, a two-time cancer survivor, underwent chemo and radiation therapy under the guidance of the hospital’s expert team.
Tony is able to access the clinical services essential to his care through Medicaid, the single largest health insurer for children in the U.S. He is just one example of the many children who make up almost half of the Medicaid population and count on this vital program to maintain their health.
Fascinated by science, technology, engineering and math, Tony is involved in the “Odyssey of the Mind” program and participates in creative problem-solving competitions with students across the country. In between traveling and school, he made time to join the track team and also serves as a member of the All Children’s Hospital Family Advisory Council, where he and his mother’s input to hospital staff helps to improve the patient experience.
Fact: Approximately two-thirds of all children with medical complexity are covered by Medicaid.