Aug 13

Meet Nevaeh: 2020 Family Advocacy Week Champion

NeveahNevaeh is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Nevaeh and her family will share information about her health journey, Connecticut Children’s Medical Center’s role in providing Nevaeh with necessary health care services, and why the public and our elected officials must invest in the future of kids like Nevaeh.

Prior to birth, an ultrasound determined Nevaeh had a gene abnormality and required immediate special care at birth.

Aug 13

Meet Zachary S: 2020 Family Advocacy Week Champion

Zachary S and his mother, father, and sibling pose in front of a Christmas tree

Zachary is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Zachary and his family will share information about his health journey, CHOC Children’s role in providing Zachary with necessary healthcare services, and why the public and our elected officials must invest in the future of kids like Zachary.

Zachary was diagnosed with spina bifida in utero at 16 weeks at Rady Children’s Hospital. His has been a complicated, complex spina bifida case.

At just seven years old, Zachary has had over 20 surgeries at multiple hospitals over the years and has seen over a dozen specialists including urology, neurology, neurosurgery, pulmonology, ophthalmology, orthopedics, gastroenterology, pediatric surgery, radiology and plastic surgery. 

Aug 12

Meet William: 2020 Family Advocacy Week Champion

William is smiling with a fountain and grassy landscape in the backgroundWilliam is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, William and his family will share information about his health journey, Dayton Children’s Hospital’s role in providing William with necessary health care services, and why the public and our elected officials must invest in the future of kids like William.

William was diagnosed with sickle cell anemia at birth.

Aug 12

Meet Simon: 2020 Family Advocacy Week Champion

SimonSimon is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Simon and his family will share information about his health journey, Nationwide Children’s Hospital’s role in providing Simon with necessary health care services, and why the public and our elected officials must invest in the future of kids like Simon.

Aug 12

Meet Ben: 2020 Family Advocacy Week Champion

Ben is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Ben and his family will share information about his health journey, Blank Children’s Hospital’s role in providing Ben with necessary health care services, and why the public and our elected officials must invest in the future of kids like Ben.

Ben wasn’t achieving his motor skill milestones by the age of 3, and he tired easily and couldn’t keep up with other kids his age.

Aug 11

Meet Theodore: 2020 Family Advocacy Week Champion

Theodore is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Theodore and his family will share information about his health journey, Nicklaus Children’s Hospital’s role in providing Theodore with necessary health care services, and why the public and our elected officials must invest in the future of kids like Theodore.

Aug 11

Meet Dillon: 2020 Family Advocacy Week Champion

Dillon is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Dillon and his family will share information about his health journey, Children’s Health’s role in providing Dillon with necessary health care services, and why the public and our elected officials must invest in the future of kids like Dillon.

On Sept. 3, 2017, Dillon was rushed to the Emergency Room at Children’s Health after a major car accident. A severed spinal cord, urological damage and facial fractures were just a few of the many injuries 11-year-old Dillon sustained.

He was left paralyzed from the waist down.

Aug 11

Meet Archer: 2020 Family Advocacy Week Champion

Archer.jpgArcher is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Archer and his family will share information about his health journey, Nationwide Children’s Hospital’s role in providing Archer with necessary health care services, and why the public and our elected officials must invest in the future of kids like Archer.

Following the critical diagnosis of his younger brother in the fall of 2019, Archer’s ADHD, anxiety, sleep disorder and depression worsened.

However, through therapy sessions at the Mood and Anxiety Program at Nationwide Children’s Hospital in Columbus, Ohio, Archer is doing much better. The program is dedicated to serving the needs of adolescents like Archer with a primary diagnosis of a mood or anxiety disorder.

Aug 10

Meet Emma: 2020 Family Advocacy Week Champion

Emma is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Emma and her family will share information about her health journey, Joe DiMaggio Children Hospital’s role in providing Emma with necessary health care services, and why the public and our elected officials must invest in the future of kids like Emma.

Aug 10

Meet Amour: 2020 Family Advocacy Week Champion

Amour is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Amour and his family will share information about his health journey, Children’s Hospital of Michigan’s role in providing Amour with necessary health care services, and why the public and our elected officials must invest in the future of kids like Amour.

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