May 19

Meet Michael: 2021 Family Advocacy Week Champion

Michael is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this special event, Michael and his family will discuss his health journey, Nicklaus Children’s Hospital’s role in providing Michael with necessary health care services, and why the public and our elected officials must invest in the future of patients like him.

Michael was diagnosed with hepatosplenic T-cell lymphoma at 19 years old. It’s a rare cancer affecting the liver, spleen and bone marrow.

May 18

Meet Ethan: 2021 Family Advocacy Week Champion

Ethan is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Ethan and his family will discuss his health journey, Gillette Children's Specialty Healthcare’s role in providing Ethan with necessary health care services, and why the public and our elected officials must invest in the future of child patients like Ethan.

Ethan was born with distal arthrogryposis, a disorder characterized by joint deformities that restrict movement in the hands and feet.

May 17

Meet Kimberly: 2021 Family Advocacy Week Champion

Kimberly is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Kimberly and her family will discuss her health journey, Children’s Specialized Hospital’s role in providing Kimberly with necessary health care services, and why the public and our elected officials must invest in the future of patients like Kimberly.

At 21, nasal discharge became a persistent issue for Kimberly. At first it was chalked up to allergies, however, antihistamines provided no relief. She was then admitted to the emergency room for additional testing. 

May 17

Meet Zach: 2021 Family Advocacy Week Champion

Zach is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Zach and his family will discuss his health journey, Wolfson Children’s Hospital’s role in providing Zach with necessary health care services, and why the public and our elected officials must invest in the future of patients like Zach.

Zach’s parents noticed his behavior had changed but they just chalked it up to typical 15-year-old adolescent behavior. However, they soon realized it was something more. 

May 17

Meet Senya: 2021 Family Advocacy Week Champion

Senya is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Senya and his family will discuss his health journey, CHOC Children’s Hospital of Orange County’s role in providing Senya with necessary health care services, and why the public and our elected officials must invest in the future of patients like Senya.

During Theresa’s pregnancy, doctors were closely monitoring Senya's growth as they had noticed abnormalities during an ultrasound. He was born premature at 33 weeks and three days. 

May 14

Meet Adrian: 2021 Family Advocacy Week Champion

Adrian is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Adrian and his family will discuss his health journey, the Children’s Health Children’s Medical Center Dallas’ role in providing Adrian with necessary health care services, and why the public and our elected officials must invest in the future of patients like Adrian.

One morning Adrian woke up and his body was swollen all over. At 3 years old, he was taken to urgent care but was then directed to the emergency room at Children’s Health Children’s Medical Center Dallas’ where he was immediately admitted.

May 13

Meet Claire: 2021 Family Advocacy Week Champion

Claire is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Claire and her family will discuss her health journey, Le Bonheur Children’s Hospital’s role in providing Claire with necessary health care services, and why the public and our elected officials must invest in the future of patients like Claire.

A few hours after birth, Claire’s skin began to turn blue while she was in the hospital nursery. The neonatologist on call suspected a congenital heart defect and called for a helicopter transport to Le Bonheur Children’s Hospital.

May 12

Meet Liliana: 2021 Family Advocacy Week Champion

Liliana is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Liliana and her family will discuss her health journey, Johns Hopkins All Children's Hospital’s role in providing Liliana with necessary health care services, and why the public and our elected officials must invest in the future of patients like Liliana.

As a newborn, Liliana failed hearing screenings and her echocardiograms were abnormal. Additionally, there were feeding issues, an ear deformity and crooked smile that concerned the doctors. 

May 11

Meet Isabella: 2021 Family Advocacy Week Champion

Isabella is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Isabella and her family will discuss her health journey, UCLA Mattel Children's Hospital’s role in providing Isabella with necessary health care services, and why the public and our elected officials must invest in the future of patients like Isabella.

Isabella was born prematurely and spent three months in the NICU at Huntington Hospital, Pasadena. At 1 week old, she contracted bacterial meningitis, e. coli and it proved to be a difficult path forward. She was intubated, needed a blood transfusion, and put on strong antibiotics.

May 09

Meet Sam: 2021 Family Advocacy Week Champion

Sam is participating in Speak Now for Kids’ Family Advocacy Week from June 13-18, 2021. Through this event, Sam and his family will discuss his health journey, Children’s Minnesota’s role in providing Sam with necessary health care services, and why the public and our elected officials must invest in the future of kids like Sam.

When Sam was 19 months old, he was treated at the University of Iowa Hospital for epileptic seizures. The family relocated to Minneapolis soon after – in part to be closer to the neuroscience group at Children’s Minnesota.

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