Oct 05

Family Advocacy Week 2020: “Kids’ Health, Our Future”

This past summer, over 50 patient families from 37 children’s hospitals in 22 states gathered virtually via the Speak Now for Kids Family Advocacy Week to advocate for children’s health with federal lawmakers. For many families, the experience marked the first time they had ever spoken with their elected officials.

Sep 29

Spotlight: National Childhood Obesity Month

September is National Childhood Obesity Month. Speak Now for Kids is highlighting how Nationwide Children’s Hospital in Columbus, OH helps kids reach their healthy lifestyle goals.

Group exercise following a cooking demonstration at The Center for Healthy Weight and Nutrition, Nationwide Children’s Hospital

Aug 14

Meet Chase: 2020 Family Advocacy Week Champion

Chase is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Chase and his family will share information about his health journey, Wolfson Children’s Hospital’s role in providing Chase with necessary health care services, and why the public and our elected officials must invest in the future of kids like Chase.

Chase was sick off and on during the summer of 2015.

“He would get better, and then get a little sick again,” says Cassie, Chase’s mother. “We chalked it up to a busy summer and he was growing.”

Aug 14

Meet Lucas: 2020 Family Advocacy Week Champion

Lucas in his wheelchairLucas is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Lucas and his family will share information about his health journey, Akron Children’s Hospital’s role in providing Lucas with necessary health care services, and why the public and our elected officials must invest in the future of kids like Lucas.

When he was 1 month old, Lucas arrived at Akron Children’s Hospital (ACH) in Akron, Ohio, with strep B meningitis.

Aug 13

Meet Joshua: 2020 Family Advocacy Week Champion

Joshua is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Joshua and his family will share information about his health journey, Joe DiMaggio Children’s Hospital’s role in providing Joshua with necessary health care services, and why the public and our elected officials must invest in the future of kids like Joshua.

At only 2 days old, Joshua was diagnosed with malrotation, an abnormality causing the intestine to develop incorrectly.

Aug 13

Meet Nevaeh: 2020 Family Advocacy Week Champion

NeveahNevaeh is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Nevaeh and her family will share information about her health journey, Connecticut Children’s Medical Center’s role in providing Nevaeh with necessary health care services, and why the public and our elected officials must invest in the future of kids like Nevaeh.

Prior to birth, an ultrasound determined Nevaeh had a gene abnormality and required immediate special care at birth.

Aug 13

Meet Zachary S: 2020 Family Advocacy Week Champion

Zachary S and his mother, father, and sibling pose in front of a Christmas tree

Zachary is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Zachary and his family will share information about his health journey, CHOC Children’s role in providing Zachary with necessary healthcare services, and why the public and our elected officials must invest in the future of kids like Zachary.

Zachary was diagnosed with spina bifida in utero at 16 weeks at Rady Children’s Hospital. His has been a complicated, complex spina bifida case.

At just seven years old, Zachary has had over 20 surgeries at multiple hospitals over the years and has seen over a dozen specialists including urology, neurology, neurosurgery, pulmonology, ophthalmology, orthopedics, gastroenterology, pediatric surgery, radiology and plastic surgery. 

Aug 12

Meet William: 2020 Family Advocacy Week Champion

William is smiling with a fountain and grassy landscape in the backgroundWilliam is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, William and his family will share information about his health journey, Dayton Children’s Hospital’s role in providing William with necessary health care services, and why the public and our elected officials must invest in the future of kids like William.

William was diagnosed with sickle cell anemia at birth.

Aug 12

Meet Simon: 2020 Family Advocacy Week Champion

SimonSimon is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Simon and his family will share information about his health journey, Nationwide Children’s Hospital’s role in providing Simon with necessary health care services, and why the public and our elected officials must invest in the future of kids like Simon.

Aug 12

Meet Ben: 2020 Family Advocacy Week Champion

Ben is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Ben and his family will share information about his health journey, Blank Children’s Hospital’s role in providing Ben with necessary health care services, and why the public and our elected officials must invest in the future of kids like Ben.

Ben wasn’t achieving his motor skill milestones by the age of 3, and he tired easily and couldn’t keep up with other kids his age.

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