What is the ACE Kids Act?

The Advancing Care for Exceptional Kids Act (ACE Kids Act) is a federal law that aims to improve how care is delivered to America’s children with complex medical conditions on Medicaid.

In Spring 2019, the ACE Kids Act passed Congress and was signed by the president into law as part of H.R. 1839. The bipartisan legislation was championed by Charles Grassley (R-IA) and Michael Bennet (D-CO) in the U.S. Senate, as well as Kathy Castor (D-FL), Jaime Herrera Beutler (R-WA), Anna Eshoo (D-CA), and Gus Bilirakis (R-FL) in the U.S. House.

The ACE Kids Act will:

  • Improve coordination of care for children to reduce the burden on families
  • Address problems with fragmented care across state lines
  • Gather national data on complex conditions to help researchers improve treatments for rare diseases
  • Potentially reduce health care spending, compared to the current system 

Learn more about how the ACE Kids Act became law.

Supporting Organizations

  • American Academy of Pediatrics
  • American Association for Psychoanalysis in Clinical Social Work
  • American Association of Child & Adolescent Psychiatry 
  • American Board of Pediatrics
  • American College of Cardiology
  • American College of Surgeons
  • American Heart Association
  • American Physical Therapy Association
  • American Psychological Association 
  • American Society of Echocardiography
  • American Thoracic Society
  • America’s Essential Hospitals
  • Association of American Medical Colleges
  • Association of Medical School Pediatric Department Chairs
  • Autism Society of America
  • Autism Speaks
  • Children's Cause for Cancer Advocacy
  • Children's Hospital Association
  • ChildServe
  • Epilepsy Foundation
  • Family Voices
  • March of Dimes
  • Maxim Healthcare Services
  • Mended Little Hearts
  • MomsRising
  • National Association of Children's Behavioral Health
  • National Association of Pediatric Nurse Practitioners
  • National Board for Certified Counselors
  • National Down Syndrome Society
  • Pediatric Congenital Heart Association
  • Tricare for Kids Coalition
  • Vizient