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What's Up Wednesday -- Zion

#WhatsUpWednesday is our chance to hear from the teens and young adults who are involved with the Speak Now for Kids community. For Sickle Cell Awareness Month, Speak Now for Kids spoke with 10 year-old Zion from Seattle Children’s about why she wants to advocate for kids like her siblings.

Zion lives right in the middle of an older brother and little sister who both have sickle cell disease (SCD). SCD has certainly made life different, and sometimes difficult, for Zion and her entire family, but dealing with this chronic condition has also brought the family closer and made them stronger.

This young advocate traveled to the nation’s capital for Family Advocacy Day to tell her members of Congress that sickle cell disease is very difficult to manage.

So Zion… what’s up?

Why I advocate I advocate because it’s hard to see my siblings and other kids with SCD in pain. My brother has been in pain for almost four and a half months. I want to help my siblings as much as I can.

My favorite moment from the 2018 Family Advocacy Day I loved it all! It was a very big experience and I’m so happy to be able to come. It was exciting to see many families who want to help kids like me.

What my children’s hospital means to me Seattle’s Childrens means a lot to my family! My hospital gives my entire family a better quality of life.

What I want the world to know about my condition Wel,l I don’t have a condition my older brother and little sister both have SCD. I want people to know that this is a big deal and that we really need help to find better ways to deal with the disease.

What makes me unique I’m the only person out of my two siblings with the disease! Even though I don’t know the pain my siblings are experiencing, but I understand that SCD is a big issue that I want to raise awareness for. I also love trying new things like baking, video making, sewing, art, dancing.

How do I plan to give back to the world? I plan to give back to the world by letting people know that SCD is a big deal. I want to raise awareness for SCD so more people will pay attention to it.

What do I want to be when I grow up? A fashion designer! I also want to open my own cupcake shop.

My favorite subject in school is…. Definitely art! Because nobody can tell me that my art is “wrong”.

What I’m excited about the most for the upcoming school year. Art class, puppet class, oh and definitely friends.

Didn’t see Zion’s original Speak Now for Kids Family Advocacy Post? Just click here.


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