Pages tagged "Emily"

Meet Emily: 2017 Speak Now for Kids Family Advocacy Day

Emily began showing symptoms when she was just 6 months old. But, it wasn’t until she was 6 and started falling in school two or three times a day that Emily’s doctors asked if anyone had ever done an MRI on her. She was diagnosed with chiari malformation, a condition in which brain tissue extends into the spinal canal, present at birth. She was subsequently diagnosed with tethered cord and Elhers Danlos Syndrome.