Pages tagged "Congenital Heart Defect"


Hailey and her story

In recognition of American Heart Month, members from the Speak Now for Kids community will be sharing their personal experiences of being a parent of a child with a congenital heart defect (CHD).

Today, we have the opportunity to hear from Hailey, who herself was diagnosed with a congenital heart defect (CHD) just hours after being born. We recently posted her mom Brigette’s story. You can read it here.


My name is Hailey Steimel. I am 20 years old and I was born with a Congenital Heart Defect (CHD) called Transposition of the great vessels. I have two sisters — a twin, Hope, who was born with a hole in her heart, and Hannah.  


Hailey's Story

In recognition of American Heart Month, members from the Speak Now for Kids community will be sharing their personal experiences of being a parent of a child with a congenital heart defect.

Today we’ll hear from Hailey’s mom, Brigette


Sept. 9, 1996, our daughters Hope and Hailey were born at 34 weeks.

Within a few hours doctors told us that Hailey had a congenital heart defect (CHD): Transposition of the great vessels (aorta and pulmonary artery switched).  


Alexander’s Story

In recognition of American Heart Month, members from the Speak Now for Kids community will be sharing their personal experiences of being a parent of a child with a congenital heart defect (CHD).

Today, Alexander’s mom, Kelly, will share his story.


Alexander is a four-year-old, amazing little boy who has tetralogy of fallot, pulmonary of atresia, cleft tricuspid valve, major aortopulmonary collateral arteries (MAPCAS), a restrictive ventricular septal defect (VSD) and an arched aorta. 


Daniel's Story

In recognition of American Heart Month, members from the Speak Now for Kids community will be sharing their personal experiences of being a parent of a child with a congenital heart defect (CHD).

Today we’ll hear from Daniel’s mom, Mary.


My name is Mary Adair and I live in San Antonio. I would like to share about my youngest child, Daniel. Daniel is an inquisitive 10-year-old boy who has had to endure more than any child should. He was born full-term on Nov. 12, 2006, at Methodist Children’s Hospital of South Texas.  


Emma's Story

In recognition of American Heart Month, members from the Speak Now for Kids community will be sharing their personal experiences of being a parent of a child with a congenital heart defect (CHD).

Today we’ll hear from Emma’s mom, Sara. At the time she was born, Emma’s family was living in Oklahoma and decided to temporarily move to Dallas in order to be closer to the pediatric cardiology team at the Children's Health.


We heard the words no parent ever wants to hear: “There is something wrong with your baby….we are seeing a serious heart defect.”


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