Pages tagged "Clare"

2016 Speak Now For Kids Family Advocacy Day Hero: Clare


Three days after birth, Clare began to acquire a flurry of health complications upon returning home from the hospital. From feeding tubes to ventilators, Clare was getting progressively worse. Finally when Clare was 4-months-old, she was diagnosed with nemaline myopathy, a form of muscular dystrophy that primarily affects face, neck, chest and limb muscles. Clare would not have survived long without the exceptional care she received at Cleveland Clinic Children’s. To date, Clare has had three major operations during which nine different procedures were performed. Clare counts eight different specialists as a part of her care team.