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Physical Therapy Month with Josh

October is National Physical Therapy Month, and we invite you to read about our amazing little patients who have benefited from physical therapy services at our children’s hospitals. Today’s blog is about Josh from Nemours Alfred I. duPont Hospital for Children!

Josh was born with a very rare skeletal dysplasia called Atelosteogenesis III (AO3), a connective tissue disorder which affects the development of bones, cartilage, joints, tissues and tendons. He has an underdeveloped rib cage that affects the development and functioning of the lungs.

Josh’s spinal cord was also at risk of becoming severed. At 20-months-old, he underwent a life-saving, 12-hour surgery at Nemours Children’s where orthopedic specialists repaired his severe cervical kyphosis—curvature of the neck. Over the next several years, he underwent multiple surgeries to repair a cleft palate, leg and feet realignment and more recently a spinal fusion to correct his scoliosis. 

Today Josh is living a full life and thriving. “He doesn’t think limits, he just thinks about enjoying life,” says mom, Christa. Josh is involved in Cub Scouts and sings in two choirs. He also enjoys horse backriding through a program for kids with special needs called Heavenly Hooves at the McCormick Research Institute.

To view more photos visit Children’s Hospitals Photo Exhibit.


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