Meet Zion: 2018 Family Advocacy Day Champion
Zion is participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, Zion will share information about her siblings’ health journey and the importance of children’s health care with members of Congress. Below is her story.
Zion is a creative, compassionate, spicy girl who loves to live life out loud. At any given time, you might find this 10-year-old stuck in a book, at the computer writing a new story, or creating an iMovie. She also enjoys cooking and loves to make cupcakes without recipes — you should really try her apple cupcakes one day!
This young baker lives right in the middle of an older brother and young sister who both have sickle cell disease. Sickle cell has certainly made life different, and sometimes difficult, for Zion and her entire family, but dealing with this chronic condition has also brought the family closer and made them stronger.
Zion’s siblings get excellent care at Seattle Children’s Hospital, and while their conditions have remained the same over the years, the education and care provided by the hospital has meant that the family is able to manage a lot of their care at home. But the team at Seattle Children’s provides so much more than just expertise to this family, “they genuinely make efforts to know and understand our family beyond our kid’s conditions,” Zion’s mom, Foxy, gratefully notes.
Since Zion’s brother and sister can’t attend Family Advocacy Day, this superstar sibling is flying to Washington, DC to represent them and talk to lawmakers about her awesome family and her siblings’ unique health care needs.
“Living between an older brother and baby sister with sickle cell can be very challenging,” Zion’s proud mom points out. “Zion has had to make many sacrifices and has developed a level of compassion for children living with chronic illnesses.”
In her meetings at Family Advocacy Day, Zion will tell senators and House representatives that sickle cell disease is very difficult to manage, but there is new hope amongst the sickle cell community and families like Zion’s — new medical advancements seem to emerge almost daily. This young advocate will also share that, while her family has faced many trials living alongside such a relentless disease, they are resilient and choose to make the best of every day.
Join us in welcoming Zion to 2018 Family Advocacy Day!
LOVE. ELAINE AND THE TRIPLETS. K, L, AND Q.
Cousin Sarah (from Mississippi)