Meet Sydney and Kayla: 2017 Speak Now for Kids Family Advocacy Day Heroes

When twins Kayla and Sydney were born, their newborn screening came back with some bad news. Sydney was diagnosed with sickle cell disease and Kayla — the elder sister by one hour and one minute — was found to carry the trait. Sickle cell disease is described as a group of disorders that cause red blood cells to become misshapen and break down. This in turn causes infections, pain and fatigue.

“My initial reaction was shock and disbelief, followed by tears. I thought it was my fault for not knowing my partner and I both carried the trait,” shared their mother, Tricia.

Having a brother who has sickle cell, Tricia knew first hand of the excruciating pain Sydney would endure throughout her life. Since their birth, both Kayla and Sydney have received immaculate care at the Children's Hospital at Montefiore.

Now almost 17, the girls they both enjoy dancing, listening to music, trying different cuisines, and especially traveling.

Help us welcome Sydney and Kayla to Washington, D.C.!