Meet Sam: 2018 Family Advocacy Day Champion
Sam is participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, Sam will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.
Every now and then, all children will let their mind wander away from a teacher’s instruction in the classroom. But for 9-year-old Sam, a host of medical conditions make it exceptionally difficult for him to focus and learn in school.
Sam contends with Fragile X syndrome, which is a congenital condition that causes a range of developmental problems including learning disabilities and cognitive impairment. He also has autism, an anxiety disorder, and ADHD.
Luckily, he has the developmental and behavioral pediatricians at the Children’s Hospital of Greenville Health System (GHS) by his side! Today, Sam and his team are doing their very best to overcome his challenges so he can be successful in the classroom.
Sam’s special relationship with the hospital started shortly after he received his diagnosis at age 2, and it continues to this day. Since Sam struggles with emotional and behavioral challenges as a result of his Fragile X syndrome, developmental-behavioral pediatricians and therapists teach Sam strategies to overcome his deficits in communication as well as emotional and sensory regulation.
He currently receives occupational and speech therapies in the KIDNETICS department and sees a behavioral-developmental pediatrician, Desmond Kelly, MD, on a regular basis to help manage his symptoms.
Dr. Kelly has proven to be a great listener and supporter of Sam and his family, welcoming their insights and ideas to help Sam troubleshoot problems and manage the daily demands of society.
With Dr. Kelly and the team at GHS Children’s by his side, Sam is learning to navigate what could have been challenging situations with confidence. Today, Sam’s conditions have stabilized, and this young scholar loves watching videos, swimming, and playing outside.
Join us in welcoming Sam to 2018 Family Advocacy Day!