Meet Noah and Gabriel: 2018 Family Advocacy Day Champions
Noah and Gabriel are participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, the twins will share information about their health journey and the importance of children’s health care with members of Congress. Below is their story.
Once you meet Noah and Gabriel Cypress, you’ll have new friends for life! Noah loves to draw, read and write. He is currently writing three books and aspires to be a motivational speaker. His brother, Gabriel, is fantastic at soccer, basketball and drawing. While Mom and Dad are proud of their passion and entrepreneurial spirit, nothing beats their admiration of the twins’ strength.
These charming 9-year-olds were diagnosed with sickle cell disease at birth. Luckily, they receive coordinated care from the hematology, pulmonology, gastroenterology and ophthalmology teams at Children’s Hospital of Richmond at VCU. The family works hand-in-hand with seven different specialists to manage the condition and its symptoms.
“It is comforting to know that there is a place catering specifically to our sons’ needs — medically, physically and emotionally,” his parents gratefully noted. “We appreciate the family-friendly atmosphere and services that make scary situations more comforting for our boys.”
As twins with sickle cell disease, Noah and Gabriel have a unique understanding of what the other is experiencing. They have a built-in support system and they’re always willing to help one another. Noah and Gabriel will soon travel with their parents to the nation’s capital to talk with lawmakers about their special health care needs and policies that affect kids like them.
Join us in welcoming Noah and Gabriel to 2018 Family Advocacy Day!