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Meet Noah: 2018 Family Advocacy Day Champion

Noah is participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, Noah will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

Without a children’s hospital specialized in intricate and delicate pediatric cardiac care, Noah would not be here today. Despite discovering serious congenital heart defects during testing before Noah was even born, doctors were able to give his parents, Kristina and Rick, options that allowed him to survive and even thrive.

Noah was born with hypoplastic left heart syndrome with mitral atresia and aortic atresia. In order to treat these conditions, Noah had his first open-heart surgery when he was just 3 days old at Boston Children’s Hospital. Noah needed another heart surgery when he was 4 months old, and he will require a third surgery next summer.

Thanks to the expert care provided by Noah’s Surgeon, Dr. Quinonez, and the entire team at Boston Children’s, Noah was able to survive these difficult surgeries. Noah’s parents explain that the care provided by Dr. Quinonez was exceptional because, “he has always taken his time with us when discussing treatment for Noah and is able to relay very complex medical information to us in a way we can understand.”

While Noah is covered under private insurance, he also receives health coverage through Medicaid. Medicaid plays an important role in ensuring that children with complex medical needs, even those also covered under private insurance, receive the health care they need.

Boston Children’s has provided care for Noah extending far beyond life-saving surgery. The Cardiac Neurodevelopment Program secured therapies for him that have helped him catch up developmentally. What’s more, dedicated nurses, social workers and doctors ensured that Noah’s parents were taken care of, and well-prepared for the road ahead.

Today, Noah is a vibrant and bright toddler. His parents boast, “He has a great ability to keep pushing himself to persevere to do things physically, despite his heart condition making it more difficult for him. He is super friendly and forgiving, and will always give you a smile or a wave!”

Join us in welcoming Noah to 2018 Family Advocacy Day!


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