Meet Morgan: 2019 Family Advocacy Day Champion
Morgan is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Morgan will share information about her health journey and the importance of children’s health care with members of Congress. Below is her story.
Morgan has had a big heart for animals from a very early age. Her pony, Oliver, is her greatest passion! She loves to groom Oliver and has even competed in competitions with her best friend.
At 2 years old, Morgan embarked on a life changing journey that was beyond her years—a battle with idiopathic dilated cardiomyopathy, which leads to severe heart failure.
While waiting for her heart transplant at Medical University of South Carolina Children’s Health (MUSC), Morgan became just the 3rd child to ever receive the Berlin heart, a type of ventricular assist device to do what Morgan’s heart could not: pump blood throughout her tiny body. With tubes attached to Morgan’s body, the Berlin heart went wherever Morgan went.
Finally, in January 2012, this brave little girl received a new heart, which meant she no longer needed assistance from the Berlin heart! It was an emotional day for Morgan’s parents and all the medical staff at MUSC who came to know and love Morgan in a short period of time.
Morgan takes medication every day for her heart transplant and will continue to need the care of pediatric specialists for the foreseeable future. Given the complexity of her care, Morgan currently relies on six pediatric specialists. Inspired by her journey, Morgan’s parents believe that every kid should have access to specialized health care providers and a children's hospital that practices family-centered care.
Morgan wants to work with with horses when she grows up because of her love for Oliver! Whatever she chooses, we’re confident that she will do it with love and grace.
Join us in welcoming Morgan to 2019 Family Advocacy Day!