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Meet Mila: 2019 Family Advocacy Day Child Champion

Mila is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Mila will share information about her health journey and the importance of children’s health care with members of Congress. Below is her story.

It’s not every day that you have the chance to meet a resilient kid like Mila. She lights up the room with her infectious smile and everyone immediately falls in love with her fun-loving personality.

At only 3 years old, Mila is a fighter. Weighing just 1 lb 10 oz at birth, she was a 23-week micro preemie, born with many chronic conditions, including chronic lung disease, neutropenia, an atrial septal defect, patent ductus arteriosus, and developmental delays.

Mila has silent conditions. When you look at her, she might look healthy without any issues. But because of her low platelet count and neutropenia, it is crucial for her to stay germ-free. A simple runny nose for Mila can turn into something much more serious.

Despite her diagnoses, Mila pushes through the difficult path ahead with her determined spirit. She has experienced several surgeries in her short life, and her will shined through every single medical procedure. She was transferred to The HSC Pediatric Center five months after birth and she has been thriving ever since.  

“HSC has helped Mila grow to be the smart, thriving individual she is today,” her mom shares. In between practicing her ABC’s and reading with her mom, Mila still returns to HSC for outpatient services, including speech, occupational, feeding and nutrition, and group therapy to enhance her social skills. Her comprehensive care plan is made possible through both her primary insurance and secondary Medicaid coverage.

“It sounds silly to say this about this 3-year-old, but she truly loves coming to HSC for therapy. On the days we’re not here, she asks when she can go back,” her mom adds. Mila enjoys puzzles, playing with toys, and watching Pinkalicious with her family!

Join us in welcoming Mila to 2019 Family Advocacy Day!


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