Meet Max and Els: 2019 Family Advocacy Day Champions
Max and Els are participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, the brothers will share information about their health journey and the importance of children’s health care with members of Congress. Below is their story.
Max is a spirited young man who loves to act, golf, and play baseball. He was born with Tetralogy of Fallot, a heart defect that reduces oxygen in the blood flowing to the rest of the body. Max endured 13 surgeries and now has a pacemaker and an artificial pulmonary valve to assist his heart—his family credits Children’s Hospital Los Angeles (CHLA) with saving his life.
Best known as Mini Darth Vader from , Max has the privilege of using his acting talent to share his personal journey and promote awareness for heart diseases. When he isn't acting or helping local charities, he is busy being a young man—adventurous and active! Max also loves to spend time with his brother, Els. The boys’ brotherly bond holds strong and Els and Max have an extraordinary ability to relate to one another.
Els is a kind hearted 13-year-old who loves guitar, animals and baseball. He lived what seemed like a “normal life” until he was diagnosed with advanced bone age disease and premature adrenarche. Thankfully, the gifted team at CHLA was able to immediately diagnose Els and developed a game plan. He radically changed his diet and checks in with CHLA every four months to monitor the progression of his disease. The treatment plan is working; today, Els is on the proper medication and thriving!
Thanks to the great team at CHLA, Max and Els live full and vibrant lives! Join us in welcoming Max and Els to 2019 Family Advocacy Day!