Meet Major: 2017 Speak Now for Kids Family Advocacy Day Hero

Major was only 7 days old when his parents learned of his cystic fibrosis (CF) diagnosis.

“Finding out that Major has CF was the hardest day of our lives,” said his mother, Jaclyn.

rsz_blank_childrens_hospital_strube_major.jpgAfter lots of tears and talking, Jaclyn and Major’s father looked at the astounding  advancements that have been made with the medication on the market, including even a possible cure, and became optimistic about his future.

A genetic lung disease, CF is not contagious. However, people with it cannot be around each other as they can easily pass illnesses back and forth.

When asked to describe what it is like having a child with CF, Jaclyn points out that Major is an only child, so packing up his breathing treatment equipment and 11 medications is “normal’ to them. Now 3 years old, Major is living life to the fullest, including playing sports and getting messy in the dirt. Actually, when Major grows up, he plans to be a real super hero.

“Today, we can honestly say that our life is fuller, more appreciated, and with friendships we couldn’t have imagined. And that is because of CF, not in spite of it,” explained Jaclyn.

Help us welcome Major to Washington, D.C.!

Showing 1 reaction

commented 2017-06-21 17:28:48 -0400 · Flag
So excited for the good work your family will do in D.C.!! Major, you are a hero without a doubt! And your parents are pretty amazing too!