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Meet Mae: 2018 Family Advocacy Day Champion

Mae is participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, Mae will share information about her health journey and the importance of children’s health care with members of Congress. Below is her story.

Mae is a social butterfly. She has an uplifting personality and loves to talk to everyone she meets!

You might not guess it, but this bold little girl was born with childhood interstitial lung disease and spent her first 20 months in a hospital.

Franciscan Children’s not only provided medical and respiratory care, it trained and empowered her family to manage her needs independently. Mae enjoyed occupational therapy, speech therapy and music therapy from her favorite therapists at the hospital.

It is very fortunate for Mae that insurance companies are not allowed to implement lifetime dollar limits on medical treatments — her care added up to $1 million before she was even three months old. Her family is also grateful that Medicaid covered all medical expenses that her private insurance did not.

In September 2017, Mae received a lung transplant that changed her life. “Her incredible strength and advanced development post-transplant were due to the care she received at Franciscan,” her mom says. Three weeks later, Mae was discharged from the hospital and free of any breathing support.

Today, Mae lives at home where she is thriving and growing. As she runs around the house, only her scars and feeding tube might show that she was a lung transplant recipient. Her parents are proud to see Mae’s infectious and playful smile shine as she navigates her new world.

Join us in welcoming Mae to 2018 Family Advocacy Day!


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