Meet Madison and Aiden: 2019 Family Advocacy Day Champions
Madison and Aiden are participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, the twins will share information about their health journey and the importance of children’s health care with members of Congress. Below is their story.
These “miracle twins,” now 6 years old, have been through more in their short lives than any child should. But, if you had a chance to meet Madison and Aiden, you would barely notice anything different about them!
Madison and Aiden were born eight weeks premature, both with critical congenital heart defects. Between the two of them, they have had three open-heart surgeries, seven cardiac catheterizations, one eye surgery, six hospitalizations for illness, and many, many diagnostic tests.
The first year was tough for their family—Madison would cry constantly. Madison had Tetralogy of Fallot with pulmonary atresia and multiple major aortopulmonary collaterals. She had her first cardiac catheterization within 24 hours of being born. But after Madison’s first open-heart surgery at the Children’s Hospital of Philadelphia, she would cry less and less, eventually turning into the happy kid she is today!
Madison is a sweetheart. She is shy and quiet at first, but at home she is the comedian. She is very bright and a whiz at puzzles. She also loves to hang out with her “other half” Aiden!
Aiden’s journey was a bit different than his sister’s because he was expected to be the healthy twin, but he had his first open-heart surgery at three weeks old. Aiden is one of the most determined and self-motivated kids out there. He has a list of diagnoses, but he won’t let anything stop him!
Join us in welcoming Madison and Aiden to 2019 Family Advocacy Day!