Meet Maddox: 2019 Family Advocacy Day Child Champion

Maddox is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Maddox will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

Maddox is extremely loving and outgoing! He smiles all the time and loves meeting new people. Even though Maddox has been through so much in just three years of life, this joyful little boy managed to bounce back quickly and happily.

At birth, Maddox was diagnosed with Down syndrome and an atrioventricular canal defect—his heart had several holes and only one valve. Unfortunately, the hospital in Maddox's home state, Maine, doesn’t have any pediatric cardiac surgeons. His family acted quickly and called Boston Children’s Hospital to get the best care for Maddox. A few days later, Maddox was flown by air ambulance to Boston and transferred to the cardiac intensive care unit. At only 7-weeks-old and weighing barely five pounds, Maddox had open-heart surgery. Thankfully, he has been thriving ever since.

Today, Maddox is growing and developing! Best of all, his little heart is healthy and functioning. Though Boston is far away from home, Maddox gets his yearly blood work drawn at Boston Children’s because they never fail to provide a pleasant experience for him and his family. He also visits the Down syndrome clinic twice a year and cardiology department annually for check-ups.

Despite his condition, Maddox is a happy, wild boy with a bright future ahead of him. He loves to dance and can even follow along with dance movements. He also loves to fold laundry and gets excited when it comes out of the dryer!

Join us in welcoming Maddox to 2019 Family Advocacy Day!

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