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Meet Luke: 2018 Family Advocacy Day Champion

Luke is participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, Luke will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

Luke loves to watch and play football. When the University of Kentucky Wildcats are playing on television, you are sure to find him shouting “Go Big Blue!” to cheer on his favorite college football team. If you see 11-year-old Luke working hard during football practice, you would never guess that he is battling a chronic disease.

This young athlete was diagnosed with cystic fibrosis (CF), an inherited chronic disease that primarily affects his lungs and digestive system. He has had five surgical procedures, and will likely need more in the future.

Luke is a tough kid. He understands that perseverance is the key to keeping him healthy, “so he doesn’t complain about the eight breathing treatments, hour-long-lung percussions, or 30 medications he has to take each day,” his parents shared. His community has been a strong support group, helping Luke be a normal kid. After school, you’ll find him hanging out and playing video games with his neighbors.

Luke is still battling CF, but this ongoing, chronic illness is stable thanks to the great care he receives at Norton Children’s Hospital.

Since Luke’s diagnosis, his family has been active in advocating for CF research and treatment options. They speak at events, participate at hospital fundraisers and encourage donations to help Luke and other kids like him achieve a long and healthy life. Luke’s parents, Joey and Jessica, are founders and directors of Cure CF, a charity that has raised over $700,000 to find a cure.

Join us in welcoming Luke to 2018 Family Advocacy Day!

 


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