Meet Layla: 2017 Speak Now for Kids Family Advocacy Day Hero

Layla’s mother had a normal, healthy pregnancy. It wasn’t until a little over an hour after her birth that Layla’s doctors informed her parents she was going to be having a “mild heart procedure.” Layla had been born with a congenital heart defect. Soon after that announcement, the transport team arrived to take her to Advocate Children’s Hospital for a total anomalous pulmonary venous return (TAPVR) repair.

Since her first surgery, Layla, who will be turning 6 in July, has been diagnosed with other conditions which have then led to multiple surgeries. Through the extremely difficult procedures and painful recoveries, Layla’s mom, Ivonne, describes what a hero she has become in their family. 

“[She’s] true example of what it is to really have the desire to get better,” said Ivonne.

Even though she is non-verbal, Layla is very social and enjoys having kids around her. Her mom points out how easily she adapts to new situations. Currently, she is receiving speech, occupational and physical therapy. Her short-term goals are chewing safely, using her right hand more, and strengthening her trunk to be able to sit on her own soon.

“It is safe to say that Layla is alive thanks to having Medicaid,” said Ivonne. “Because otherwise I have no idea how we could possibly afford to pay for all of this and for her procedures.”

Join us in welcoming Layla to Washington!