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Meet Kenny: 2019 Family Advocacy Day Child Champion

Kenny is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Kenny will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

Kenny is a fighter! He is a sweet 5-year-old who loves super heroes, riding his scooter and petting his bulldog, Buster.

Kenny was diagnosed in utero with multiple complex congenital heart defects and had three heart surgeries before his first birthday. Since then, this brave little boy has fought through every session of physical, occupational, speech, nutritional and developmental therapy. He tried very hard to learn to walk and talk, but the toughest part was learning to eat—he had developed a severe oral aversion and could not eat solid food.

By the time he was 3, Kenny started to make drastic improvements! His progress has all been thanks to his hard work and perseverance in therapy and the exceptional medical care at Advocate Children’s Hospital. The tenacity he’s shown will be always be crucial for him; even though Kenny is meeting all his developmental milestones, he is going to need life-long specialty cardiac care and likely even another surgery.

But while he has battles ahead of him no kid should have to fight, Kenny is thriving and preparing for a more typical adventure: kindergarten!

Join us in welcoming Kenny to 2019 Family Advocacy Day!


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