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Meet Kennedy: 2019 Family Advocacy Day Child Champion

Kennedy is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Kennedy will share information about her health journey and the importance of children’s health care with members of Congress. Below is her story.

Meet Kennedy! Kennedy is 13 years old, and you can always catch her dancing or singing. She also loves anything that has to do with water, in fact, her parents often catch her trying to do dishes in the kitchen! She is always determined to be her best and gets some extra encouragement from her cheerleaders at Children’s National Health System.

Kennedy was born with a unique combination of chromosomal anomalies that contribute to numerous developmental and physical challenges. In fact, she was so unique that doctors had never seen a combination like hers. But this didn’t slow down Children’s National from implementing a health plan involving a diversified team to keep Kennedy on the right track. Now, she requires care from over 30 different specialists, but the entire hospital works hard to ensure the care for this special girl is specialized to her and her family.  

The Beads of Courage program has offered tremendous emotional support to Kennedy and her family. Each time she stays overnight at the hospital or has a specific procedure, she is given a different bead. These beads are not only a sign of what a fighter Kennedy is, but they also help her practice her colors and numbers! Even though Kennedy has thousands of beads, they are simply a reminder of how far she has come and how much she has pushed through.

Join us in welcoming Kennedy to 2019 Family Advocacy Day.


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