Meet Kairi: 2021 Family Advocacy Week Champion
Kairi is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Kairi and her family will discuss her health journey, Children’s Hospital Los Angeles’ (CHLA) role in providing Kairi with necessary health care services, and why the public and our elected officials must invest in the future of patients like Kairi.
When Kairi was 8 years old, her pediatrician discovered an enlarged spleen and recommended getting an ultrasound. That same day, her pain worsened, and Kairi was rushed to the emergency room at Children’s Hospital Los Angeles where she was admitted for two weeks.
Hormone injections helped Kairi produce red blood cells until the doctors reached a diagnosis. She also had a blood test every morning and three different procedures while at Children’s Hospital Los Angeles.
By the time she was 9 years old, Kairi was diagnosed with autosomal recessive polycystic kidney disease, a genetic disease which causes cyst growth and eventual kidney failure. She was on dialysis until doctors performed a kidney and liver transplant.
“CHLA’s specialized treatment for Kairi’s transplant has been amazing,” says Oscar, Kairi’s father. “I don’t think we would have gotten the same experience elsewhere.”
Today, Kairi is healthy and energetic. She is stable and monitored at regular check-up appointments. She enjoys making TikTok dance videos, listening to music, writing stories and researching the paranormal.