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Meet Jonathan: 2019 Family Advocacy Day Child Champion

Jonathan is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Jonathan will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

Jonathan is a brave, thoughtful and a creative 5-year-old. His favorite activities are usually those he can share with others, like playing board games and video games.

Last year, Jonathan was running around his preschool without a care in the world when his teacher noticed that his left eye seemed to be turning in occasionally. An MRI at Akron Children’s Hospital revealed that Jonathan had a golf-ball sized tumor near his brain stem. He was diagnosed with medulloblastoma and soon began treatment with radiation.

This brave little boy received 30 radiation treatments and nine chemotherapy courses in a year. But, that didn’t take away his positive and uplifting attitude. Aside from losing all his hair from radiation treatments and occasionally stumbling while running, it’s hard to tell that he has cancer.

Even through the hardest of times, Jonathan has always remained affectionate, imaginative and caring. He enjoys what most of us take for granted and has commented on how beautiful the day is even on the car ride to receive chemotherapy. No matter what obstacle he faces, Jonathan remains strong!

Join us to welcome Jonathan for 2019 Family Advocacy Day.


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