Meet Jaime: 2018 Family Advocacy Day Champion
Jaime is participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, Jaime will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.
It is not every day you get to meet a kid like Jaime. He lights up any room he is in with his infectious smile, and everyone he meets falls in love with his boundless sense of humor.
At only 5 years old, Jaime is wise beyond his years. He has learned in his few short years what it takes most of us a lifetime to understand: if he sets his mind to it, he can accomplish anything!
When he was just 6 months old, Jaime was diagnosed with merosin-deficient congenital muscular dystrophy, which results in decreased muscle tone and mobility. But with support from The HSC Pediatric Center, Jaime doesn’t let his condition get in his way.
Jaime’s mother, Jessica, says, “Thanks to the HSC Pediatric Center, Jaime has all of the equipment that he needs to keep up with his family and his friends at school….they have been wonderful to us."
Because of his medical complexity, Jaime receives health care coverage through Medicaid. This coverage has been crucial in ensuring that Jaime has access to the doctors and equipment he needs. Jessica explains that, without Medicaid, “Jaime’s needs simply would not have been met.”
Muscular dystrophy does make movement more challenging for Jaime, but with a little extra determination, he can do everything that any kid his age can do. Like any 5-year-old boy, Jaime loves to watch TV, play with his mom’s phone and play catch.
He also receives physical therapy and aquatic therapy to increase his muscle strength. Jaime is a star during his aquatic therapy — he loves the pool, where he feels free and is able to move on his own.
Jessica boasts, "Jaime is a very happy, social child — he works hard and does his best in everything he does. Sometimes he has to work harder than other kids due to his diagnosis, but he always has a smile on his face."
Join us in welcoming Jaime to 2018 Family Advocacy Day!