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Meet Jack: 2019 Family Advocacy Day Child Champion

Jack is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Jack will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

Jack loves going for walks, playing with his sister and watching Peppa Pig.

Jack was born six weeks early. This young fighter spent about four months in the NICU at Yale New Haven Children’s Hospital and was eventually diagnosed with cerebral palsy. Today, he relies on seven specialists to get the care he needs.

Thanks to the doctors, nurses and specialists at Yale Children’s, he was able to progress from having a tracheostomy and being tube fed to being trach-free and eating by mouth— all in less than three years! Dr. Palazzo has played a huge role in Jack's progress and success. She’s patient, parent-oriented and goes above and beyond to ensure that all Jack’s needs are met and all options are explored.

"Love is Jack and Jack is Love—we are so in love with Jack,” his parents share. “Cerebral palsy is very tough to manage since there is no cure and there are times when hope is limited. While our day-to-day lives are more challenging because of Jack’s diagnosis, he always finds way to make us smile and brighten up our days. He truly is an amazing gift and we cherish every moment with him.”

Jack has faced so many hardships in his short life, but he is an extremely hard worker and continues to make significant progress every day!

Join us to welcome Jack to 2019 Family Advocacy Day.


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commented 2019-06-22 16:32:06 -0400 · Flag
Oh little Jack. I remember the heartache your parents went through worrying if you would make it through your first weeks of life. Yet here you are making huge strides toward things many thought were going to be impossible for you. You are a true miracle and your progress and strength are going to give so much hope to so many families dealing with similar situations. ❤