Meet Hudson: 2020 Family Advocacy Week Champion

HudsonHudson is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Hudson and his family will share information about his health journey, Johns Hopkins All Children’s Hospital’s role in providing Hudson with necessary health care services, and why the public and our elected officials must invest in the future of kids like Hudson.

Hudson was diagnosed at birth with a congenital brain anomaly, which affects his neurological development. He was in the NICU for the first 40 days of his life, where tests concluded that Hudson had more than 10 different conditions.

“His diagnoses were overwhelming at first,” says Melissa, his mother, who adopted Hudson at birth. “For three months I lived out of a hotel and spent 12-18 hours with Hudson every single day, loving him, holding him, singing to him, learning what to do during his seizures. I learned how to use a gastronomy tube, proper suctioning and so much more. Typical life activities and routines were put on hold, and I took a leave of absence from teaching.”

The family relocated to Seminole, Florida, for better access to therapies, home health nursing and proper schooling and to improve quality of care for Hudson.

Hudson has been at Johns Hopkins All Children’s therapy since December 2019. He visits four days a week for feeding therapy, augmented communication clinic, physical therapy and occupational therapy. He also sees a primary care physician and a team of specialists in epileptology, neurosurgery, ophthalmology, endocrinology and gastroenterology.

Now 5 years old, Hudson has improved his physical strength, communication and coordination since coming to Johns Hopkins All Children’s Hospital.

Today, Hudson is happy, hardworking, humorous, sweet, smart, sassy and loveable. He looks forward to his therapy and always gives his all. He loves books, his adaptive tricycle and keeping the beat to music. He has the best smile and can easily light up a room. He also gives the best hugs. It took him four years to learn how to hug so each one is extra special.

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commented 2020-08-09 16:46:03 -0400 · Flag