Meet Hope: 2019 Family Advocacy Day Child Champion

Hope is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Hope will share information about her health journey and the importance of children’s health care with members of Congress. Below is her story.

Meet Hope! Hope is 13 and loves anything that has to do with music. She plays the piano and sings in her school choir, where her teacher often relies on her for her perfect pitch. This budding actress also just auditioned for her first school play!

Before Hope was even born, her doctors discovered she had complex congenital heart defects and asplenia, meaning her spleen was not functioning normally. She was also diagnosed with cerebral palsy and spastic left hemiplegia, which affects muscle contractions in her left leg. She has had to undergo three different open-heart surgeries and two surgeries on her leg. Thanks to the care she received from St. Joseph’s Children’s Hospital, she was able to go home just three days after her last open-heart surgery!

Today, Hope uses a brace on her leg and will likely face more leg and heart surgeries in the future. She relies on Medicaid for her doctor’s visits, medication, and other medical devices that help keep her thriving. Hope is confident in her ability to fight in the future because of the support she received from St. Joseph’s Children’s Hospital.

Join us in welcoming Hope to Family Advocacy Day 2019!

Showing 2 reactions

commented 2019-06-23 01:24:28 -0400 · Flag
Hope, you rock! Have a great trip to Washington. Love Lacey & Kano
commented 2019-06-20 16:15:34 -0400 · Flag
We cannot wait to #bringHopetoWashington !