Meet Hadley and Gipson: 2021 Family Advocacy Week Champion
Hadley and Gipson are participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this special event, Hadley, Gipson and their family will share information about their health journey, Children’s Hospital of San Antonio’s role in providing Hadley and Gipson with necessary health care services, and why the public and our elected officials must invest in the future of patients like them.
At 10 months old, Hadley needed to have surgery to untether her spinal cord, but first the doctors wanted to run genetic tests to further understand her developmental delays.
The results declared that Hadley has Wolf-Hirschhorn syndrome, a rare chromosomal disorder affecting many parts of the body but primarily delayed growth and development, intellectual disability, and seizures. The rare nature of Wolf-Hirschhorn means that there was a long period of learning and adjusting for the family.
Three years later, Hadley’s younger brother Gipson was born and he spent about a week in the NICU following problems regulating blood sugars, temperature and weight. Gipson was quickly diagnosed with Down syndrome.
“At first, there was a little shock on my end, but then just trusted God to guide us,” says Candice. “We are blessed.”
Currently, Hadley sees five specialists and is monitored by a neurologist for her seizures. Gipson is doing well. Both Hadley and Gipson love dancing and playing outside.
“Children’s Hospital of San Antonio has shown so much care and have been so helpful,” says Candice. “They have helped my children in so many ways.”