Meet Geno: 2019 Family Advocacy Day Child Champion

Geno is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Geno will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

Geno was diagnosed at his 21-week ultrasound with complete heart block and hydrops fetalis. His family immediately rushed to the Pediatric Cardiology Department at Cleveland Clinic Children’s to increase his odds of survival.

His parents understood that Geno only had a 5-10% chance of survival, but this heart warrior fought against those odds! Geno was born at 29 weeks and discharged five months later. He went home with supplemental oxygen and a nasogastric tube for food and medicine, but this young fighter made it home. Even though Geno faced many challenges as a premature baby, they did not define or limit his potential in any way.

Geno is now followed on an outpatient basis by a variety of specialties at Cleveland Clinic, including pulmonology and two pediatric cardiology teams.

Cleveland Clinic addresses each new diagnosis and has helped Geno to overcome many roadblocks in his two short years of life. Because the complex care team was involved in every aspect of his health and development, Geno can now walk, talk and play with his brothers, Archie and Bernie. Geno is curious, joyful, and resilient—the future belongs to this dream-come-true baby.

Join us in welcoming Geno to 2019 Family Advocacy Day.

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