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Meet Courtney: 2019 Family Advocacy Day Champion

Courtney is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Courtney will share information about her health journey and the importance of children’s health care with members of Congress. Below is her story.

Courtney loves playing volleyball, basketball and taking pictures. But these activities wouldn’t be possible without the expert care at Cincinnati Children’s Hospital. At 11, Courtney was diagnosed with juvenile arthritis, myasthenia gravis, Cushing’s syndrome and coronary heart disease—but she doesn’t let any of her medical conditions define who she is.

Courtney relies on 15 specialists and looks forward to visiting her rheumatologist, Dr. Brunner, the most. Courtney feels comfortable talking to her—they joke and tell stories to each other which makes visits so much more fun! She tells everyone that Dr. Brunner saved her life when she diagnosed her heart condition and myasthenia gravis.

Since Courtney started treatment at Cincinnati Children’s, her arthritis has gone into remission and the hole in her heart is finally repaired. Even though this champion is fighting her own battle, she loves to advocate for others. Courtney even testified at a Senate hearing to speak up for kids like her, and she loves to Facetime newly diagnosed kids in other states to help them understand they aren’t alone.

Wow! Amazing work, Courtney. We can’t wait to see you advocate for kids on Capitol Hill. Join us in welcoming Courtney to 2019 Family Advocacy Day!


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