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Meet Conner: 2019 Family Advocacy Day Child Champion

Conner is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Conner will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

Conner is fearless and determined. He loves to sing songs, especially Shimmy Shimmy Coco Pop from the movie Big, and the theme song of Beauty and the Beast!

Conner was born premature at 25 weeks and experienced many associated conditions including cerebral palsy, seizures, developmental delays and blindness. Despite being born at a hospital that had a NICU, Conner’s rare medical needs required him to be airlifted to the Children’s Hospital of Philadelphia (CHOP). Since the doctors at CHOP are trained to treat children with similar medical conditions as Conner, he began to show improvement.

After his discharge from CHOP, Conner began physical and occupational therapy at Children’s Specialized Hospital for several years.

“Our son’s everyday success is possible because of the dedication, knowledge, and specialization of treatment from many individuals at Children’s Specialized Hospital. Without a children’s hospital, Conner would not be doing as well as he is or he would not be with us,” his parents share.

Despite his everyday challenges, Conner brings joy everywhere he goes and never fail to make people smile. He doesn’t let his conditions stop him from doing what he loves. Conner participated in his school spelling bee and was a musical star in his school play Aladdin.  

Join us in welcoming Conner to 2019 Family Advocacy Day.

 


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