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Meet Colin: 2019 Family Advocacy Day Child Champion

Colin is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Colin will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

Colin has great curiosity and imagination. He’s usually an easy going, positive little guy—unless it’s time to wake up for school (like most 6-year-olds).

Colin developed like a normal child until he began to have significant respiratory issues and started vomiting sporadically. After being admitted to Children’s Minnesota for pneumonia, Colin was diagnosed with a ganglioglioma, a type of brain tumor.

“Brain tumors are terrifying and the deadliest form of childhood cancers. There’s no real sense of security after you enter this world,” his parents share. “Often, treatments are harsh and contain high risks of complications. It’s a difficult road filled with deep anxiety, social isolation and finding ways to adapt to life-altering disabilities for the child and family.”

Luckily, Colin had a successful partial resection surgery and his tumor has been stable since then! His oncology team has been extremely supportive throughout his treatment. Colin had occupational, physical, and speech therapy for a year after the surgery to improve his motor skills and regain the ability to eat by mouth.

Today, Colin is a happy-go-lucky kindergartener. He practically eat all food—even vegetables—but cheeseburgers are his favorite! He is a great big brother, a good friend, and a compassionate, kind-hearted person.

Join us in welcoming Colin to 2019 Family Advocacy Day!


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