Meet Chase: 2019 Family Advocacy Day Champion

Chase is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Chase will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

Chase is a happy, content teen with a fantastic disposition. He loves to attend school, ride his bike and cheer for his sister’s softball team. He’s a terrific brother and an immense source of pride to his mother.

This 15-year-old was born with Dandy-Walker malformation, a congenital defect that affects his movement, behavior and cognitive ability. After diagnosis, Chase and his family were airlifted from a community hospital to begin treatment at Children's Hospital at Dartmouth-Hitchcock.

Unfortunately, Chase’s current condition is still complex—his neurological conditions have been heightened since he hit puberty. During winter seasons, he also suffers from pneumonia and pulmonary issues. In fact, Chase has needed inpatient care four times in the past six months due to pneumonia.

Chase has the strength of an ox and is his mother’s greatest teacher. Despite his condition, he wakes up and goes to bed every day with a smile. His presence is a gift to all those that know him.

Join us in welcoming Chase to 2019 Family Advocacy Day!

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commented 2019-05-18 17:14:56 -0400 · Flag
I’m so happy for you Chase that you will be participating in this important event! I have no doubt that you will enjoy it and will touch many hearts. You touched mine when we met. Your life journey is an inspiration and I’m glad to know that that you will be sharing your story with many others. Go Chase!