Meet Calvin: 2018 Family Advocacy Day Champion
Calvin is participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, Calvin will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.
In 2013, Calvin was born with a tracheal esophageal fistula and esophageal atresia — he underwent surgery right after birth. He then spent his first three months of life in the capable hands of NICU staff at Cincinnati Children's Hospital Medical Center (CCHMC).
But at month four, Michael and Brittney were able to take Calvin home for the first time. While they initially welcomed him home as a foster son, at 17 months they were able to proudly declare that Calvin was officially a member of their family forever.
Calvin’s road after the NICU has not been perfectly smooth. At age 2, he was diagnosed with mandibulofacial dysostosis with microcephaly (an EFTUD2 mutation) — he is one of only 108 people in the whole world with the condition.
But beyond his rare diagnosis, it is his tenacity that makes him truly unique; while his parents were told Calvin may never be able to walk, this 5-year-old now runs! “Calvin is amazing!” his mother gushes. “He has done everything we were told he may not be able to do!”
The road wasn’t easy for Calvin, but with the help of his loving parents and the ongoing care of staff at CCHMC, he is thriving. Calvin loves his big sister, super heroes and playing outside. He also loves cuddles, music and being read to.
Currently in preschool, this young scholar asks if he can go to school even on the weekends. Calvin’s teachers adore him, and he even made a best friend this year!
Join us in welcoming Calvin to 2018 Family Advocacy Day!