Meet Brynn: 2018 Family Advocacy Day Champion
Brynn is participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, Brynn will share information about her health journey and the importance of children’s health care with members of Congress. Below is her story.
Brynn begins every day with a smile and a hug. She enjoys playing and singing with her older brother, Nicholas, and is excited about the prospect of starting kindergarten in a few years. To meet Brynn today, you might never know she spent almost the entire first year of her life in the hospital.
She and her twin brother, Will, were born 14 weeks and 6 days premature with underdeveloped lungs. In the first few days, the twins thrived. But at day five, Will’s health deteriorated and he passed away from pseudomonas sepsis and respiratory distress.
Within an hour of losing Will, Brynn starting showing the same symptoms. Brynn had a collapsed lung, meningitis, two bacterial infections and pneumonia. But thankfully, based on the lab results that were taken for Will, the team knew how to treat Brynn — she survived.
Brynn received excellent care at University of Michigan C.S. Mott Children's Hospital for 287 days. She had a PDA ligation, a tracheostomy, and a cleft lip repair during her nearly ten-month stay. C.S. Mott then prepared Brynn’s parents for the road ahead. A dedicated team of nurses and therapists offered training and guidance to ensure Mom and Dad felt confident moving forward.
Brynn’s mother explained, “Just a few short decades ago, Brynn would have had to live in the hospital until her lungs were fully developed. Hospitals like Mott have given families the opportunity to be properly trained and take their loved ones home to start living life.”
In addition to her coverage under private insurance, Brynn qualifies for Medicaid due to her medical complexity; Medicaid has played a vital role in ensuring she has access to the health care she needs.
Today, Brynn is doing extremely well! She is now ventilator free, and her parents hope her tracheal tube can be removed at the end of this year. Brynn's favorite activities include playing on the swings, playing ball, and singing and dancing to Moana with her favorite doctor.
Her mother boasts, “Brynn has had five surgeries, more illnesses than I can count and yet, she still wakes up every day, giving it her all.”
Join us in welcoming Brynn to 2018 Family Advocacy Day!