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Meet Asher and Quinn: 2018 Family Advocacy Day Champion

Asher and Quinn are participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, Asher and Quinn will share information about their health journey and the importance of children’s health care with members of Congress. Below is their story.

Asher has a curious mind. This 7-year-old boy does not let his medical challenges stop him from being sociable and outgoing. When he’s not conducting science experiments, you can find him with his friends on the playground or exploring the local parks.

Asher was diagnosed at birth with heterotaxy syndrome, multiple congenital heart defects, hydrocephalus, primary ciliary dyskinesia and seizure disorder. He has had extensive treatments at Maria Fareri Children’s Hospital, including open-heart surgery, 11 brain surgeries and intestinal surgery.

Even though hospital stays are frightening to most kids, events like A Day for Hearts and NICU Reunions make the hospital a fun and exciting place for Asher. He has special relationships with countless staff members and loves to greet them with hugs, smiles and pictures. “I truly feel each one of them loves my son. They remember his favorite color, and that he loves science and nature,” his parents share.

Although all of Asher’s conditions are lifelong, he has gone a year without brain surgery and his heart is in excellent control. Today, Asher is as healthy as he can be!

As the oldest brother, Asher loves to play and care for his siblings. Asher’s sister, Quinn, is also a patient at Maria Fareri Children’s. Quinn was born prematurely and needed care in the NICU. When she was a year old, she also needed to be admitted to the hospital for a gastrointestinal condition. Thanks to the great care she received at Maria Fareri Children’s, Quinn is healthy; she loves to explore the outdoors and spend time playing with her beloved big brother.

“We would like to stress the importance of pediatric hospitals to continue their support for babies in the NICU,” Quinn and Asher’s parents note. “The skills of these hospitals are very specialized and truly make a difference in caring for the littlest, most fragile patients.”

Join us in welcoming Asher and Quinn to 2018 Family Advocacy Day!


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