Meet Abel: 2019 Family Advocacy Day Champion

Abel is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, Abel will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

At age 2, Abel has given life more meaning than most people get to experience—he’s a fighter. Abel was diagnosed with congenital diaphragmatic hernia and a rare genetic disorder called Corenilia de Lange syndrome. He was critically ill for the first six months of his life—his parents wondered if he could ever come home.

Through multiple surgeries, countless interventions and life-saving moments from over 10 specialists, he fought with every ounce of his being!  Abel is known as the “medical miracle who moves mountains” because he finally graduated from the Medical Surgery Intensive Care Unit (MSICU) after 323 days at Boston Children’s Hospital.

Without the methodical and innovative approach of his care team, Abel’s odds of survival would be very slim. Dr. Terry Buchmiller was Abel’s primary surgeon and her operating hands are priceless to Abel and his family. Abel was less than a week old when Dr. Buchmiller first saved his life, and she continues to save his life over and over again.

Today, Abel is home with his parents and two rescue dogs thanks to the amazing team at Boston Children’s. He’s currently working hard to consume food by mouth, communicate, and hope to continue to wean his ventilator support over time at home.

This warrior is brave and kind—anyone who looks into his eyes will fall in love with his old and sweet soul. This active little boy loves to crawl around the house and play with any musical or light-up toy that sings to his happy soul.

Join us in welcoming Abel to 2019 Family Advocacy Day!

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